Many men’s clinic patients’ first thoughts are to go online for information, but that too can be overwhelming. For example, a Google search for the words “colorectal cancer” turns up roughly 134 million results, in six-tenths of a second, no less. Those results can range from the helpful and important, such as the website Cancer.Gov from the U.S. National Cancer Institute, to the stupid and downright dangerous, such as a Facebook page touting Aunt Tilly’s Miracle Mayonnaise Cure for Colon Cancer. (OK, so we made that last one up, but you get the idea.)
One of the most trusted online health websites is maintained by the Mayo Clinic in Rochester, MN. It offers 11 tips for coping with a cancer diagnosis, the first of which is, “Get the facts about your cancer diagnosis.” That recommendation is the inspiration for the Colorectal Cancer Provider Outreach Program (CRC POP).
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Men’s clinic Colon Cancer Treatment and diagnosis
“There are 13,000 gastroenterologists in the country, and we diagnose colorectal cancer 150,000 times a year,” says program creator Brian Dooreck, MD, of Memorial Healthcare System in Pembroke Pines, FL.
“What we created with the Colorectal Cancer Provider Outreach Program is that it now allows gastroenterologists to have a conversation with a patient — I can say, ‘Now listen, take out your phone, and text the word COLON and send it to 484848,” he says.
Doing so returns a text in a few seconds with the words “You are not alone. You have our support. Here. Now,” and a blue heart emoji, followed by a link that takes the user to a web page with a document containing contact information for the American Cancer Society and other support organizations, including the Colorectal Cancer Alliance, Fight Colorectal Cancer, Colon Cancer Coalition, and Colon Cancer Foundation.
No Gain — Except Helping Patients
The text-based service is free.
“There’s no hook, there’s no cost, there’s on sale, it’s not monetized. There’s no gain except helping people,” Dooreck says.
Mark A. Lewis, MD, director of the gastrointestinal cancer program at Intermountain Healthcare in Murray, UT, himself a survivor of rare cancer, says the program can help newly diagnosed patients cut through the fog that can follow a cancer diagnosis.
“I think it’s a great initiative, and it helps unify some of the guidance we give these folks,” he says.
Lewis has the rare perspective of seeing the issue from both the oncologist’s and the patient’s standpoint: Early in his training as a hematology-oncology fellow at the Mayo Clinic in 2009, he was diagnosed with the rare syndrome multiple endocrine neoplasia type 1, an inherited condition that causes tumors to grow in hormone-producing glands such as the thyroid or pancreas. He had surgery to remove tumors in the pancreas.
Multidisciplinary Care
The connection to resources offered by the program is only part of the package of services that patients receive at large academic medical centers.
Similarly, at Intermountain Healthcare, patients newly diagnosed with cancer are contacted within 24 hours by patient navigators who help them manage concerns and expectations about their care and connect them to resources both in the hospital and the community.
Although their practices differ in size and scope, Dooreck, Lewis, and Kuhlman all agree with the central message and purpose of CRC POP: “You are not alone. You have our support.”
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Cancer symptoms you need to know
Changes in Your Skin
A new spot on your skin or one that changes size, shape, or color could be a sign of skin cancer. Another is a spot that doesn’t look the same as all the others on your body. If you have any unusual marks, have your doctor check your skin. They will do an exam and may remove a small piece (called a biopsy) to take a closer look at cancer cells.
Nagging Cough
If you don’t smoke, there’s very little chance a nagging cough is a sign of cancer. Usually, it’s caused by postnasal drip, asthma, acid reflux, or an infection. But if yours doesn’t go away or you cough up blood — especially if you are a smoker — see your doctor. They may test mucus from your lungs or do a chest X-ray to check for lung cancer.
Breast Changes
Most breast changes are not cancer. It’s still important, though, to tell your doctor about them and check them out. Let them know about any lumps, nipple changes or discharge, redness or thickening, or pain in your breasts. They’ll do an exam and may suggest a mammogram, MRI, or maybe a biopsy.
Bloating
You may have a full, bloated feeling because of your diet or even stress. But if it doesn’t get better or you also have fatigue, weight loss, or back pain, have it checked out. Constant bloating in women may be a sign of ovarian cancer. Your doctor can do a pelvic exam to look for the cause.
Problems When You Pee
Many men have urinary issues as they get older, like the need to go more often, leaks, or a weak stream. Usually, these are signs of an enlarged prostate, but they could also mean prostate cancer. See your doctor for an exam and maybe a special blood test called a PSA test.
Swollen Lymph Nodes
You have these small, bean-shaped glands in your neck, armpits, and other places in your body. When they’re swollen, it often means you’re fighting an infection like a cold or strep throat. Some cancers like lymphoma and leukemia can also cause this kind of swelling. Talk to your doctor to pinpoint the cause.
Blood When You Use the Bathroom
If you see blood in the toilet after you go, it’s a good idea to talk to your doctor. Bloody stool is likely to come from swollen, inflamed veins called hemorrhoids, but there’s a chance it could be colon cancer. Blood in your pee could be a problem like a urinary tract infection, but it may be kidney or bladder cancer.
Testicle Changes
If you notice a lump or swelling in your testicles, you need to see your doctor right away. A painless lump is the most common sign of testicular cancer. Sometimes though, men may just have a heavy feeling in their lower belly or scrotum or think their testicles feel larger. Your doctor will do a physical exam of the area and may use an ultrasound scan to see if there is a tumor or another problem.
Trouble Swallowing
The common cold, acid reflux, or even some medicine can make it hard to swallow once in a while. If it doesn’t get better with time or with antacids, see your doctor. Trouble swallowing can also be a sign of cancer in your throat or the pipe between your mouth and stomach, called the esophagus. Your doctor will do an exam and some tests like a barium X-ray, in which you swallow a chalky fluid to show your throat more clearly on the image.